Ehlers-Danlos Syndromes

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Read Eloise's publication about CranioSacral Therapy applications for those with EDS.
Applications of CranioSacral Therapy for Ehlers-Danlos Syndrome


JaxLegacy Center

TheJaxLegacy Center is a concept for an integrative medical center for connective tissue and complex disorders that is being spearheaded by Eloise Stager. The Center will be located in Connecticut, USA with a soft projected opening of October, 2018 or Early 2019. Please visit the website for more information.

www.jaxlegacycenter.com


Beighton Score

Of Special interest to Eloise is a little-known genetic, connective tissue disorder known as Ehlers-Danlos Syndrome. There is no cure. All but one (hypermobile type, hEDS ), are genetically coded. Currently, researchers have not found the genetic code for hypermobility. Diagnosis is by genetic testing, clinical evaluation or both.  Criteria for a diagnosis of Ehlers-Danlos Syndrome has been recently updated by the Ehlers-Danlos Society, an international organziation of medical experts. The Beighton Score remains a primary factor in the diagnostic criteria but a new checklist has been created to help doctors and patients with the diagnostic process.

For complete resources  for EDS please visit
The Ehlers-Danlos Society
and
EDS Awareness

Due to its effect on the central nervous system, CranioSacral Therapy can address many of the symptoms that are associated with EDS including gastroparesis, POTS, VasoVagal Syncope, pain, numbness and tingling, anxiety, sleep disorders, neck and back pain, chiari (special accommodations), and many other autonomic nervous system dysfunctions.

 

Beighton Test:  For each movement, you earn one point. Don't forget to count both sides!  A score of 4 or higher =  EDS.   


 EDS is More than just flexibility. Much, Much More!


EDS causes a defect in collagen production, leading to widespread dysfunction in the body.  Collagen is found in every system of the body:   vascular, integumentary (skin), respiratory, digestive, endocrine, reproductive, lymphatic, lymbic, immune, muscular, nervous, skeletal, urinary, and the craniosacral system. 

Disruption in the above systems can lead to: Nervous system dysfunction (dysautonomia/POTS) , joint laxity (dislocations and subluxations), delicate skin, easy bruising, mild to significant skin hyperextensibility, cognitive problems, poor proprioception (body positioning and awareness), poor wound healing,  spontaneous aortic dissection  poor digestion (gastroparesis), IBS, vision and hearing problems, problems swallowing, sleeping, Arnold Chiari Malformation widespread pain, skin flushing, Raynaud's Syndrome, etc.  

Each type of EDS expresses some unusual skin characteristics and joint laxity, but other symptoms and severity can be wide ranging among the types, and within each type, for each individual.   Some people with EDS have mild symptoms manifested by joint instability, while others are debilitated with significant, spontaneous  joint dislocations, or arterial rupture. Many are bed-bound and many are involved in athletics.